4th Saudi Rare Disease Summit (2026)

• Address: Riyadh, Saudi Arabia
• Tel: +966554809059Show Number
• Date: Sat, Feb 28, 2026 – Sat, Feb 28, 2026 ( Add to Calendar 02/28/2026 02/28/2026 4th Saudi Rare Disease Summit (2026) What are the universal challenges faced by those living with a rare disease?
  • The lack of scientific knowledge and reliable information on rare diseases often leads to delays in diagnosis.
  • The need for high-quality, specialised healthcare creates inequalities and barriers to accessing rare disease treatment and care.
  • International collaboration in research is vital to connect researchers and clinicians, ensuring progress in diagnosis, treatment, and care.
  • Due to the wide diversity of rare disorders and the presence of relatively common symptoms that can mask an underlying rare disease, misdiagnosis is common. Moreover, symptoms not only vary between different diseases but can also differ among patients with the same condition.
  Rare Disease Day is a globally coordinated movement dedicated to rare diseases, striving for equity in social opportunities, healthcare, and access to diagnosis and therapies for people living with a rare disease. Since its creation in 2008, Rare Disease Day has played a crucial role in building an international rare disease community—multi-disease, global, and diverse, yet united in purpose. Rare Disease Day is observed every year on 28 February (or 29 February in leap years—the rarest day of the year). It was established and is coordinated by EURORDIS in partnership with over 70 national alliance patient organisations. The day serves as a powerful focal point, driving advocacy efforts at local, national, and international levels. Though Rare Disease Day is patient-led, everyone—including individuals, families, caregivers, healthcare professionals, researchers, clinicians, policymakers, industry representatives, and the general public—can participate in raising awareness and taking action for this vulnerable population in urgent need of attention. By spreading the word on social media, organising events, illuminating buildings, monuments, and homes, sharing experiences online and with friends, calling on policymakers, and shining a light on people living with a rare disease, we collectively aim to change and improve the lives of 300 million people worldwide. This website helps patient organisations, advocates, and others campaigning for equity in rare diseases to access resources and promote campaign events. )